Friday, October 17, 2008

"On the upside, I'm not bleeding in my head..."

Elizabeth's resting on her bed in the darkness. We're working on keeping Gatorade down and, along with it, these under-achieving anti-nausea pills. You know your illnesses are compounding, when your goal is to steady your stomach enough so you can take Tylenol to get rid of your headache...THEN you can work on the rest of the meds you're on.

But at least she's not bleeding in her head.

Mom and Elizabeth had to return to the Westchester today because Elizabeth's lab results from yesterday indicated low platelets again. But when she went for her transfusion this morning, she already had the makings of a primo-migraine; it only got worse throughout the day. As many of you know, the Bauerlein headache reputation is one for severe light, sound, smell and motion sensitivity, not to mention the overwhelming urge to vomit. With Elizabeth, the overwhelming urge to vomit has become a daily visiter this week, but today was especially severe. Because of this and the lack of clotting (due to a low platelet count) the medical staff was concerned that she may have burst a blood vessel in her head which would be unable to clot. Obviously this could be very dangerous. DFCI and Westchester decided to run a CT scan to rule out bleeding in the head. It was ruled out.

So no matter how crappy she feels right now, the mantra is, "at least she's not bleeding in her head."

Elizabeth's next medical stop is a follow up at DFCI in Boston on Monday.

I just tried to read her this blog entry and found that she seems to be napping, for which we're very thankful. Prayers are now being accepted centering on keeping liquids/food down, keeping her slight fever in check and most of all, taking the nausea away. We're also offering a prayer of thanks for no bleeding in the head. So remember to say a little prayer!

14 Comments:

At 9:52 PM, Anonymous Anonymous said...

Were saying a B I G prayer for...

keeping liquids/food down, keeping her slight fever in check and most of all, taking the nausea away. We're also offering a prayer of thanks for no bleeding in the head!

Thinking of you.

The Yetters

 
At 9:57 PM, Anonymous Anonymous said...

Four reasons why Elizabeth thinks I would be an unfit mother:
1. I wouldn't let her have butter and sugar on her toast...but I did make sure the toast had no crust...that should count for something!
2. I used a shot glass to give her gatorate...
3. I couldn't manage to put medical tape on her booboo...ok you try in in gloves...the tape stock to both hands and they would not separate...
4. Ok, I did have a hard time helping her to put her shirt on... how was I suposed to know both arms did not go through the same hole?

Well, one day, when I have kids, I know who can take the diaper off their head and put it where it belongs...."go on sweetie, go see Aunt Liz, she will fix it..."

Jokes aside...keep those prayers coming...for nausea to disappear, for headache to go away, for Elizabeth to not be grouchy (just kidding...)

Marta

 
At 11:39 AM, Anonymous Anonymous said...

Marta, you're going to be a great mom - Elizabeth seems to be giving you plenty of practice.
As one who has no tolerance for nausea at all, I'm sending all my prayers for the nausea to stop. If everyone's anti-nausea prayers work, the rest should be able to take care of themselves.
Love from all,
Georgette

 
At 2:33 PM, Anonymous Anonymous said...

I'm sorry you're feeling so awful Elizabeth. I guess the fact that you're not bleeding in the head is one way to look at the positive. I hope the nausea goes away soon.
Love & Hugs

 
At 4:27 PM, Blogger Mrs. Fitz said...

No Bleeding in the head, Very Good. I will round up the Goombas and send them, to keep the nausea and fever and what ever else that might try to come your way to hurt you. No one will mess with them and live to talk about it. All our prayers are with you.

Love,
Mr.& Mrs. Fitz

 
At 4:43 PM, Anonymous Anonymous said...

Lizzie,

You sounded GREAT on the phone. I hope last night's terrrible set-back remains just a vague memory as you fight on!

Love you lots!
YBS

PS Marta...I know FOR A FACT what a GREAT mom both you AND Liz will make!! Chins up Girls

 
At 5:12 PM, Anonymous Anonymous said...

Marta - I seem to remember you helping to raise Zachary and Matt - and they both turned out wonderful sooo...there is hope yet - I guess you just have to have a boy!

Thinking of you Liz and hope you are feeling better.,

Love, Janette

 
At 8:34 PM, Blogger katrina said...

Okay--you have got to get the healing, chickie; Scott made me sing soprano in your absence today--functional, if not pretty. You are greatly missed in choir.

Good luck in Boston tomorrow; keep me posted so I can keep the peanut gallery in the loop. Love you!

 
At 8:37 PM, Anonymous Anonymous said...

Hope you get over the nausea and soon. It must be awful to deal with it day after day. Gatorade in a shot glass?

 
At 9:01 AM, Anonymous Anonymous said...

Good luck in Boston today!

Thinking of you...

Marta

 
At 9:02 AM, Blogger Heather Palkewick said...

I hope you had a comfortable trip to Boston. You've got our prayers. This too shall pass. Feel better. Josh sends you a big (well small but cozy and comforting) hug.

 
At 12:36 PM, Anonymous Anonymous said...

Hey EJ --

I hope your stomach was sitting well this morning and that the car ride to Boston went well. I know all the test results will come back fine! :)

Keep smilin!

Health & blessings,
Susan

 
At 4:06 PM, Anonymous Anonymous said...

You're in my thoughts all day today as you do a one day round tripper to Boston. Put this last week behind you, and our prayers are that each day from here forward you start to feel so much healthier! Hope not much more dust settles on your seat in the choir loft...your angelic tones are greatly missed. Welcome home, again!! Mrs H

 
At 8:24 PM, Blogger Monica Rose said...

Love you Liz! Lots of prayers for no badness of any kind!!!

 

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