So I think it's finally sunk in.
Not really. That was a complete lie. It really hasn't sunk in at all. I think part of the problem is that I still feel like crap. (Oops. Forgot to censor.) Marta is sitting with me right now, watching me type. (I think that she is only here so that she can nab the first post.) She just flew back from the Bahamas and, while talking to her and catching her up, I started to feel a little guilty for not blogging for 2 days. I really did think that it would sink in sooner. I mean, I was all sorts of ecstatic on Wednesday. But when I woke up on Thursday, not only did I not remember that I was supposed to be happy, but I still felt like crap. Kind of put a damper on my mood. I'll get over it.
Anyway, Wednesday was the really exciting day so I will recap that. It started off with a tense ride to medical center. Followed by a tense wait in the waiting room of the PET scan office. Followed by a needle in the arm and a shot of radioactive sugar. Followed by another 30 minutes of sitting while the sugars distributed through out my body. The technician called this percolating. He thought he was amusing. (pause) He was not.
My mother and Aunt Patty, who had both accompanied me on this little excursion, quickly discovered that talking to me, while I was this tense, was not really wise. (The technician also discovered this. But since I am not related to him, I was even less polite.) After much tense waiting, I finally went into the donut. And yes, is was just a scary as I remember it to be. However, this time, instead of lying there petrified for the 25 minutes, I got pissed off at the technician again and started thinking of creative ways to demonstrate my displeasure to him. Don't worry. I didn't follow through on any of them...For the most part.
The next hour or so was spent in tense waiting in the doctors office for my appointment. However, this time I was distracted by the incredible pain in my back. Apparently, when designing donut machines, nobody takes the time to consider those who actually have to lay in them. They are very, very hard surface. And my bones hurt anyway from the nuelasta. They don't need any help to feel worse.
I was finally called into an office, in which we waited for another 10 minutes. When Dr. Ahmed did come in, he just stopped in for a second and then ran down to check my PET results. When he came back he was yelling down the hall, "When's the party?" This was slightly confusing. I couldn't figure out who he was talking to. Another patient? A nurse? Nope. ME.
This also left me confused as I had no idea what he was talking about. Then he said that the results were fabulous. Once again, with the confusion. I was about to ask him to quantify "fabulous", but he must have seen the confusion on my face because he jumped in with, "Complete Remision" The scans came back totally clean. Nothing glowing, no active tumors. My first question was when I could stop the chemo. No such luck though. I still have to finish out the last three rounds. Even though there are no large masses, the PET does not pick up individual cells. Up the upside, he has said that we won't have to do radiation. (And there was much rejoicing. I don't see you rejoicing, people. Show a little enthusiasm. Radiation would have been bad.)
This is about the time the perm-a-grin started kicking in. I couldn't stop smiling. We talked a little about some precautions that I will need to take in the future, not the least of which is sunscreen, hats, and not overtaxing during recovery. Actually I just threw that last one in there. Maybe the family will buy it. ...Oops...I really have to stop putting my nefarious schemes on the blog. Not a great way to sneak things by them.
I also have to have scans for ...well...ever. I will have alternating PET and CT scans every three months for two years, then twice a year, then at five years I will only have to have them once a year. The next fifteen to seventeen months are the key period though. If it doesn't come back in that time there is an excellent chance it won't ever come back. On top of that, my quick remission bodes very well for the future. Apparently, being that receptive the chemo means it is less likely to reaccur.
I'm sure there are other things to tell you. Things like my siblings' rather humerous reactions when they were called. (I had to tell Carol, to tell her first graders, that they were "happy tears" as she was in the middle of a reading group at the time. And I sent Katrina back to her after school program in tears and later to be pummeled by an angry german student when Kat didn't tell her about the results right away. Erica, who had been a little weepy when she called us (for her own reasons) ended up not crying because of my news. The only stable reaction I had from a sibling was Paul. I was actually able to carry on a coherent conversation with him. Thank god for big brothers.
After the requisite number of calls to family and those I consider family, I took a nap. Then I blogged. Then I went to choir. Sort of anti-climactic for such a momentous day. I know. You were all expecting a party. Well, I still can't drink so the party will have to wait.
Finally, some peanut gallery responses.
1. To those who wish me to continue to post. (Doug, Leon, Manny) I will do so through the rest of the chemo if for no other reason then to whine about my aches and pains to people who seem to want to listen. I don't know why this would amuse, but who am I to argue. We know I love the attention.
2. To Melanie: Chocolate always counts. And I'm thrilled that Luis even knows who I am. I think it's adorable that he prays for me.
3. To the Dewketters (tee hee. I love writing that) and all those I've worked with: thank you for the support. It's wonderful to know that you were all checking in.
4. Joan: Welcome to the blog. Better late than never. Actually that's not true. With this group of people you're probably safer staying away, their a little nuts. However, on to the question. For my Mom's 60th Birthday last Sept. we all decided to go to St. John's, USVI. So. that is where I will be headed with 20 to 30 family members three weeks after my last chemo. But besides that Marta has insisted that we go to a spa when this is all over and before I return to classes. I didn't put up to much of a fight. A weekend at a spa sounds really, really nice right now.
5. I want to thank everyone for their support. And prayers. You guys are great. Between all the prayer chains and the Texas contingent, I knew I would be ok.
That's pretty much it and I really am tired, so I'm going to go to bed. Talk to you later -Elizabeth
12 Comments:
For you to be tired and go to bed, that is something! We are all still on cloud 9 with the news, and so happy for you and your family. Give your mom another hug, she deserves it!
janette
p.s. what happened to Marta?
I know what you mean, Elizabeth; the last two days have been surreal. I too kept forgetting why I was so relieved; but every so often, someone in work would ask why I was in such a good mood, or I would catch myself smiling in the mirror, and I would wake up and want to know where that huge boulder was...you know, the one that had been crushing my chest and challenging my right to breathe for the last two months? And then I would remember!
It all happened so quickly, our emotions were in a whirl and we flew through denial, grief, hope and relief within 60 days. So I started thinking: is this how it feels to have ADD? My new theory is that Fred had an attention disorder as well! Thank God he lost interest in you!
I know Tuesday will be a different kind of chemo experience, but I'm still glad you are letting me come. Love you!
Yo Beth,
I am so very happy for you, good luck with the rest of the treatmentm, and by the way I resent being called a little nuts....psychotic and delusional perhaphs but nuts is so generic.
Emanuel
Elizabeth...your GOOD news has put a lilt in everyone's ... I've gotten this far and am not sure where a lilt should go, in everyone's step, voice,...let me start over . Your Good news has lifted the spirits of all who know you, and put a spring in our steps (that's better.) A ways to go with treaments and we're not letting up on our prayers and support, for sure. Thanks for that call on Wednesday!!! Mrs Hinz PS This blogs been out almost twelve hours, where is everyone in the comment section? Late night Friday and sleeping in?
I am so happy and relieved from your news on Wednesday. Remission is a great word! Im sure this will make all the remaining treatments more bearable. Continue getting well.
Love your (coherent) brother,
Paul
Still smiling from your good news!
Hey thanks for the details. I bet with all the happy spirits around you the chemo will knock out any skulking yucky cells that aren't quite traceable. This is all still so awesome. Congrats Liz!
Even more smiles,
Di
Who decided because the daughter has Cancer, she is aloud to BLOG to everyone (as opposed to Blab to everyone), that her mother turned 60. Elizabeth, I love you, but you are not being sensitive to my feelings....and so I will just have to continue inviting people to check out your port. Do all the Bauerlein sisters remember Zachary (when he was little) using the "Can I touch it??" comment? Really, Elizabeth, I am thrilled that we see an positive end to this experience in your life..and I only pray that the next three treatments are no worse than the last. Mom
PS A special thanks to Nel, Joan, Mike, Heather & Nate...who all played a role in getting us to Dr. Ahmed.
What do you mean you still can't drink? We're sitting here with hot and cold running Margaritas and have no market for them.
All seriousness aside though, please do follow through on all the medical advice and instructions. As you may know, both Waltraud and I went through the "treatment", she through chemo, I through radiation. We are both breathing--rather nicely. Plainly, the alternative is terrible!
Gisela, Sigrid's mom, visited us today. She wants me to pass on her best wishes to you for a speedy and lasting full recovery. I told her that the Lord is watching over you and that there is no doubt about your recovery.
Congratulations again and all the best.
Gerhard
P.S.: So Mom is that young, is she?
No reply required.
hey Liz,
we opened the champagne to cheers for your helf. we wish you good luck at the rest of the chemo. You will do great. we keep thinking for you and praying. I hope to see you soon :o).
take care
with love lucy
Thank you so much for calling before I left for Vegas. You made my trip so much better! I'm so very happy for you. We just got in last night. Good luck tomorrow. I hope all goes well. Finish out the chemo and you will never have to go through this again! Thank God! Love, Amy
What's going on Liz?!?! no update about how yesterdays chemo went? Well, I hope it was fine. I'm assuming the same as the others, but I seem to think it might be getting just a bit easier. Sorry I didn't get a chance to call last night but my cell phone is most definitely on its last legs... well, its worse than that, maybe its last toes or something. I'm afraid to open and close it!
OK, I'll definitely call home tonight if you're in the mood to chat. I hope you're still smiling about your great news!!!! Love, Erica
PS: have you gotten anything in the mail?!?!
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